golden tumeric milk

Golden Tumeric Drink | (Vegan + Anti-Inflammatory)

Tumeric has been a real game changer as I am in the process of taking a holistic approach for fibromyalgia management for the first time in ten years. I’m working on a more comprehensive post soon to share my process and experience but for now I am elated to share this tumeric-rich vegan “milk” drink that I am now taking every day before bed.

Tumeric has so many health benefits and anti-inflammatory properties that are a great aid to those like me living with chronic pain. This warming beverage is just one way you can incorporate more of it into your diet. I’ve adapted my version from the recipe found on the Minimalist Baker blog.

Golden Tumeric Drink adapted from the recipe found on Minimalist Baker 

Ingredients

  • 1 ½ cups full fat coconut milk (about one can)
  • ¾ cup almond milk 
  • 1 tablespoon coconut oil 
  • 2 teaspoons ground tumeric 
  • 2 teaspoons maple syrup 
  • 1 teaspoon pure vanilla extract 
  • ¼ teaspoon ground ginger 
  • ¼ teaspoon ground cinnamon 
  • pinch ground black pepper
  • (makes about 2 cups/ 16 ounces)

Preparation

  1. To a small saucepan, add coconut milk, almond milk, ground turmeric, ground ginger, cinnamon stick, coconut oil, black pepper, and maple syrup

  2. Whisk to combine and warm over medium heat. Heat until hot to the touch but not boiling – about 4 minutes – whisking frequently.
  3. Serve immediately, dividing between one 16 ounce mason jar
  4. Best when fresh, though leftovers can be stored covered in the refrigerator for 2-3 days.
  5. Reheat on the stovetop or microwave until hot.
pile of trash on a sidewalk

20 Ways You Can Reduce Waste in Your Every Day Life

For me, this year has been all about sustainability. As a social entrepreneur sustainability has two very important definitions that I take to heart every single day:

  • The ability to be maintained at a certain rate or level.
  • Avoidance of the depletion of natural resources in order to maintain an ecological balance.

The more I think about the future of my entrepreneurship the more this thinking has lead me to perform specific actions that condition me to be more thoughtful about my personal impact on the earth. Like all of us I am bombarded and indoctrinated by “throw away” culture on a daily basis. To counteract this toxic messaging I am constantly reading books, articles, and digital magazines as well as listening to podcasts that help me rethink the way I live. I am constantly asking myself what can I personally do to reduce my carbon footprint, minimize the amount of waste I am producing, and change my thinking around what “away” really means as it pertains to waste. There is no such thing as away and with this in mind I have forced myself to consider small ways I can improve the negative impact that I personally have on the environment. While it is true that I cannot save the earth alone it is also true that every small action that I take to reduce, reuse, and not produce waste has a cumulative impact on improving the earth.

“What can I do to reduce my carbon footprint and minimize the amount of waste I am producing”

To continue reading the full blog click here

Celiac Awareness Month | May 2018

May is National Celiac Awareness Month

Can you believe it’s May already! Time sure does fly when you are having fun and if you anything like me you are having tons of fun this year.  Per usual spring has just finally bloomed here is Western, NY but May marks the official celebration of: National Celiac Awareness Month.

The National Foundation of Celiac Awareness and life-long gluten free(ers) like myself dedicate the entire month to casting a wider net in our mission of educating, highlighting, and teaching everyone about celiac disease, gluten sensitivity, and other gluten related illnesses.

Gluten free living continues to be a major industry in the US and globally. According to Statista, by 2020, the gluten free market is projected to be valued at 7.59 billion U.S. dollars. In 2015 gluten free sales amounted to over 2.79 billion U.S. dollars. Despite its omnipresence and the awareness there continues to be a national lack of knowledge about celiac disease as well as stigma, stereotype and mockery of this chronic disease. However despite what the comics say; celiac disease is a real autoimmune disease with real life changing effects.

As prevalent as the “term” (and label) is there are thousands of people diagnosed and even more that a). Don’t know what celiac, gluten, or gluten free means; b). Don’t consider it to be real c). Have a bevvy of misconceptions and false impressions about the illness and the term ” gluten-free”.

Stay tuned for more articles, personal stories, and blogs from celiac disease survivors and more sharing and telling how celiac disease affects their life every single day.

May Days & Productivity | Living with Fibromyalgia

Happy May to you!

I don’t know about you but I am more than relieved that we seem to finally finally be across the threshold of the iron clad lock winter 2018 has had our our region. Every year my body laments the inconsistency of our weather patterns here in Upstate NY and even though we have officially entered into the spring/summer season of the year “the fibro monster” inside me now has to acclimate to a sudden spike in temperature, barometric pressure, and pollen!

Still I try to count as many blessings as possible and warmer temps and sunnier skies are a welcomed change despite the ills of chronic illness. For me the change in season means a change in mindset and understanding that my levels of productivity are as vaccilating as the weather. I try to roll with the punches as much as possible but would be lying if I didn’t share that it is extremely frustrating to be bed bound on the gorgeous days we have been experiencing. I haven’t really bed outside my house let alone my bed since this past Sunday.

A Spring Epiphany

Speaking of productivity the last few weeks have seen me more productive than ever; mainly due to my decision to finally and fully make substitute teaching my (extremely) part-time career and mentally focusing the bulk of my mental and physical energy of growing 540WMain. This process is one that has been on going and in flux since 2016 and since founding the organization I have battled with internal and external pressures to keep one foot on both sides of the fence so to speak. What do I mean I mean you ask?

What do I mean I mean you ask?

Well, being a very non-traditional person in more ways than one and living in a society and among people that do not fully understand the entrepreneur spirit or what it means to live with a chronic illness; I have found it challenging to stand up to family and peer pressure to work in a job and a career that I’ve been told is more stable and consistent than creating and building my own organization. Even though most of this feedback comes from a place of love and care; it created a tension and anxiety within me that has made me try to keep the best of both worlds so to speak. Teaching and educating is my passion and because of this I am very good at it. Working in the public education sector in many ways is more consistent and offers certain benefits that I you just do not have when you are building a grassroots organization. I could go on, but in an effort to keep the story on point; I made the huge step in mid-April to only substitute two days a week and give the rest of my energy to the sustainability of 540WMain.

On the outside this decision may look like a huge risk. Living with a small personal income while committing myself to an organization that is growing and makes me no personal money (yet) takes a level of sacrifice, courage, and risk that most people will never understand. Still, the universe has blessed with with many signs over the past four weeks that have told me that this decision was one of the best I could have made.

What’s Going On

As 540WMain’s leader, I’ve been able to engage in community events and networking that is vital to the sustainability of this organization. I’ve been able to have more mental and physical productivity in writing grants and reaching our to corporate funding streams. I’ve been able to hire a second part-time staff person; Jake Sell Hicks 540WMain’s new Community Organizer. I’ve been able to reassemble 540’s Ambassador Team (Board of Directors) and create a stronger internal infrastructure. All of this in addition to managing a chronic illness which is quite literally a full-time job by itself.

The fruits of this labor have not quite come to fruition. But the seeds are being planted one day at a time every single day and I look forward to sharing more of 540’s growth with you as we approach it’s 2nd anniversary in June 2018. Having the schedule and capacity to make myself more present allows 540WMain and the brick and mortar space to be available for last minute bookings like the Community Meet and Greet w/Jumaane Williams that was sponsored by RoCitizen on Friday April 27th. This event probably wouldn’t have happened at 540WMain had I not been available. This is just to tip of the iceberg of the work that I’ve been doing to maintain the 2018 focus and vision of “sustainability” and as always I thank you for all your support in helping 540WMain grow.

Share this post. Donate to 540WMain. Like 540 on Facebook. Register for a class.

xoxo

Dependence is Not Addiction | Living with Fibromyalgia

The war on opiods is real. Let me restate that” The war on opioids is real and those of us living with chronic pain conditions and invisible illness are at risk of losing essential medications that give us a quality of life.

The war on opioids is real

I say all this in acknowledgement of a real need to address “opioid abuse” and “substance use disorders” which are very real and claiming the lives of many individuals across the country. However, as someone living with chronic pain and a dependence on prescription opiioid medication to live a successful productive life, I cannot help but be fearful that the vilification and “war” on prescription opioid medication with broad sweeping generalizations is not only frightening by upsetting.

The purpose of this post is not to undercut the real need for legislative control and action around “substance use disorder” but to help dispel the myths and misunderstanding of the categorizations of prescription dependence vs illegal and prescription drug addiction (now known as substance use disorder).

What is Addiction

Psychology Today defines addiction as:

“An activity initially enjoyed by a person (eating, drinking, drug-taking, etc.), but with repeated use and higher amounts needed to achieve a similar ‘high’ that can become life-threatening for the person’s level of work and life responsibilities”.

Medical and substance abuse communities have found that there are neurochemical differences between a normal brain and an addict’s brain. There are even perceived differences between addiction versus the abuse of a substance.

Addiction can occur without physical dependence; consider cocaine or methamphetamine both have little outwardly apparent withdrawal syndrome but addiction to either can devastate lives. Non-substance addictions such as gambling, sex or internet also have no physical dependence. What is common to all these addictions is the unnatural cravings that prompt the compulsive behaviors. (National Alliance of Advocates for Buprenorphone Treatment)

Physical dependence can occur without addiction; this is the common experience of most chronic pain patients who are able to take their opioid medication as prescribed for pain but don’t develop the uncontrollable compulsion and loss of control. A desire to avoid withdrawal is not addiction. (National Alliance of Advocates for Buprenorphone Treatment)

Studies have shown that addiction can form in individuals through a combination of genetic makeup and poor social skills. This is why the offspring of addicts are prone to becoming addicts. One study showed that a child of a parent with a drug or alcohol addiction is eight times more likely to develop an addiction as well.

What is Dependence

‘Dependence’ is a term used to describe a person’s physical and psychological loss of control due to substance abuse. If a person uses many drugs and develops a physical dependence on these drugs, that person is usually described as dependent. That alone isn’t always an addiction, but it can accompany addiction. Today, medical experts refer to ‘dependence’ usually around a person’s constant drug and alcohol abuse. Conversely, chronically addictive behaviors like compulsive sex, constant gambling, and even non-stop Internet usage can be seen as an ‘addiction.

Why Understanding the Difference Matters

According to recent reports; atleast 100 million people with chronic pain aren’t getting the relief they need and are seeking alternatives.

Because of some healthcare workers’ attitudes toward opioids and media coverage of the opioid epidemic, when patients bring up the fact that they live with pain, they’re looked at with skepticism, questioned relentlessly, second-guessed, and judged. This creates a conundrum for physicians that because they aren’t adequately trained to deal with chronic pain conditions or don’t believe in what the cannot see; create a disparity in how they prescribed opioid medication.

There can be an all or nothing approach to the prescription of pain killers with patients who for instance have a surgery having medication over prescribed. This creates a situation where leftover medication unintentionally getting into the hands of children or worse finding itself to the black market because it wasn’t safely stored or disposed of. On the flip side, chronic pain patients may be cut off from essential pain medication because that same physician that over prescribed to a surgery patient fears long term addiction in a chronic pain patient.

Representation Matters

In addition to these disparities, there’s not a lot in the media about chronic pain patients. Chronic pain is not visible therefore it is hard to fully comprehend how someone can live with vacillating debilitating pain. Additionally because the media is all about “juicy” attention grabbing rhetoric; speaking about opioid use in the context of addiction sells more headlines and is a more interesting story than highlighting the experiences of chronic pain patients. It’s all about addiction and people abusing their pills. But there are pain patients suffering long term and they can’t get any help from the medical community, many experts explain. “No one is willing to listen to them.”

Again there’s no question that the use of opioid medications in the United States is a dangerous and mounting problem. The statistics speak for themselves:

  • In 2015, opioid overdoses killed approximately 33,000 people, up from around 11,000 10 years prior.
  • Opioid abuse has been called the deadliest drug epidemic in U.S. history.

But the epidemic is driven primarily by illegal — not medical — abuse of prescription pills.

  • A study of over 135,000 opioid overdose victims found that just 13 percent were chronic pain patients.
Even when the numbers are put into the proper context, chronic pain patients bear an inflated burden of the backlash against opioid use, which was driven by the pharmaceutical industry in the 90s.

How to End the Myth

I take opioid medication every single day to function and live. I am not an addict.

The single most important thing people can do is to listen to chronic pain patients and advocates when they share their life experience. To often people judge and stereotype based on what they think they know or narratives that they have seen. Everyone’s experience is different and the statistics show that most chronic pain patients are not addicts. Chronic pain patients should advocate for themselves and share their stories. The more we know the more we can understand to listen.

At a systemic level, in 2013, the American Psychological Association (APA) released the fifth edition of the DSM. In this edition, the definitions revolving around addiction were changed once again. The APA ditched both “substance abuse” and “substance dependence” in favor of “substance use disorder.”

Part of the reason for the change was the confusion surrounding the word ‘dependence.’ The hope is that defining an addiction as a substance use disorder was a more inclusive way to identify people who need help, but may not have a debilitating addiction.

Advocacy

I join the U.S Pain Foundation as a Pain Ambassador or spokesperson for issues and legislation surrounding chronic pain patients, advocacy, and showing everyday through my work with 540WMain Learning Academy and beyond the face of chronic pain. Each of us is different and unique. Laws and legislation have to reflect this diversity. While reform is absolutely necessary, some of the restrictions on opioids have unintentionally harmed legitimate patients who rely on opioids to manage their pain and use their medications appropriately. As a result, these individuals are left with their pain under-treated or untreated. A failure to treat pain appropriately, however, leads not only to unnecessary physical suffering, but also increased disability, lost productivity, depression and anxiety, and even suicide.

Says the U.S Pain Foundation:

“In order to effectively address the opioid epidemic, we must enact balanced reforms that consider the needs of both patients with pain and patients with substance use disorder. Balanced reforms include things like increased access to alternative treatment options (including complementary and integrative medicine and medical marijuana); prescription monitoring programs; abuse-deterrent formularies; increasing public awareness about safe medication disposal; better understanding of risk factors and appropriate screening for substance use disorder; and so on.” Read their full position statement.

To learn more chronic pain visit the U.S Pain Foundation

Sources: Addiction Center | The Recovery Village | Healthline | U.S Pain Foundation |(National Alliance of Advocates for Buprenorphone Treatment)

Vegan Baked Macaroni & Cheese | Living Vegan

It’s taken me months to find the time to share this amazing Vegan Macaroni & Cheese recipe with you. Created last year, this mac & cheese became one of the most popular dishes that I created for 540WMain Learning Academy’s monthly vegan pop up dinners. My goal was to create a vegan version of this classic American “main” dish as a side.

Feedback was so positive that I made it a staple for the newly created Vegan Cheese Making Class also at 540WMain. I’m elated to finally finally share this recipe with the world. Get into the recipe below.

Vegan Baked Macaroni & “Cheese”

Ingredients

  • 3 yams, peeled and steamed soft
  • 2 stalks celery
  • scallion
    3 cups non-dairy milk
  • 2 cups veggie broth
  • ¼ cup just mayo
  • ½ cup nutritional yeast
  • ½ cup (1 stick) vegan margarine
  • ¼ cup almond meal
  • ¼ cup balsamic or apple cider vinegar
  • ¼ cup Dijon mustard
    3 tablespoons olive oil
  • 2 teaspoons minced garlic
    2 teaspoons tumeric
    1 teaspoon cumin
  • cooking spray

Preparation

  1. Wash and scrub yams, cut in half, cover with foil and bake on 400 degree F for 50-60 minutes or until tender. Allow to cool completely before moving on.
  2. Meanwhile, bring 5-6 cups water to boil. Add pasta, a pinch of salt and drizzle of olive oil. Reduce heat to low-medium, cover and cook for 15 minutes or until tender. Drain and set aside in large mixing bowl.
  3. In a food processor blend yams with milk until smooth. Set aside.
  4. Coat a cast iron skillet with cooking spray, add celery and scallion and sauté on medium heat until tender. Add margarine, almond meal, vinegar, just mayo, mustard, garlic, cumin, and tumeric and stir until margarine is completely melted. Add in puree yam mixture. Pour this sauté mixture over macaroni along with veggie stock. Stir in yeast and salt and pepper to taste.
  5. Grease a 6×9 pirex dish and add macaroni mixture. Bake on 400 for 15 minutes until bubbly. Allow to sit for 5 minutes before serving.